Chai Smith Chai Smith

A Letter to My Oldest Son

In this letter to my oldest son, I open up about our struggle to understand his pain, the mistakes I made, and how sorry I am. It’s been a tough journey, but I’m here for him now, more than ever.

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Chai Smith Chai Smith

No Means No, Right?

If it's not a choice, don't give a choice. When it comes to medical exams or procedures that are non-negotiable, presenting them as a choice can be confusing for kids.

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Chai Smith Chai Smith

What Rattles a Doctor?

No one understands a medical condition like a parent whose child has been diagnosed with one. This is a reality that can challenge even the most experienced doctors…

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Chai Smith Chai Smith

Illnesses Are Not a Contest

Navigating life with a child who has a chronic pain condition is a journey that's often hard for outsiders to grasp. Yet, people outside our experience often have plenty to say.

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Chai Smith Chai Smith

AFOs, Compression Clothing, and Bracing

Orthotics, compression clothing, and bracing can be invaluable for providing the necessary external support to those with hypermobility, significantly enhancing their activity levels and quality of life.

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Hot Topic Alert: Off-Label Medication
Chai Smith Chai Smith

Hot Topic Alert: Off-Label Medication

Before we make blanket statements, let’s remember: behind each prescription, there’s a story, a person struggling, a family making tough calls for the right reasons.

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School Field Trips: Disability and Accessibility
Chai Smith Chai Smith

School Field Trips: Disability and Accessibility

When planning field trips, inclusivity should be a priority, not an afterthought. If one student can’t participate, choose a different activity. With plenty of accessible options available, finding a suitable alternative is not only possible, but necessary, to ensure all the kids can enjoy and learn together.

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